Monday, October 24, 2011


I remember when Dylan was two or three days old.  We were in the NICU with him and got called into an office to meet with the genetic counselors at the hospital that Dylan had been transferred to.  The results from Dylan's FISH test had come back and they wanted to discuss them with us. 

Dylan was born with Down syndrome and as we found out in this meeting, meant that he would be doing just about everything later than everyone else.  She said, "You know how other kids walk at about one year?"  Yes, I nodded.  "Well.  He probably won't walk until about two...maybe three." 

That.  That statement right there burdened me for a long time.  I could not, for the life of me, comprehend it.  Cassidy walked when she was 10 months old...   How could this be?  How?  What would we do?  What...? 

Well, it was to be.  Dylan turned two years old, then three.  Was he walking?  No.  Was it the devastation that I once believed it would be?  No. 

You see...after the initial bombardment of what he may or may not do, you discover that life happens.  Your eyes open to the bigger picture of what truly matters.  Walking, talking...that will come.

Yes, in time that stuff comes. And you smile and celebrate and marvel at the work that went into this very moment. 

And then. 

Just like continues on.


Jenny said...

This post made me cry. My son is two next month and he will not be walking...And just like you when I sat in a little room surrounded by Dr.s and Nurses and was told about the delays...I thought no way, not Russell... Surely he will walk by two!
But here we are...And its not as devastating as I thought it would be...But yes there are times I am sad because two years later I am STILL carrying him everywhere...

This little video of Dylan had me in tears cause it reminds me to be patient...It will happen.

Thank you for this post :)

Rachel said...

Beautiful...just beautiful:) He has worked so hard and you have learned such patience:) Keep it up!

Christi Harrison said...

beautiful! i agree 100%. and now we have to chase down our walkers! why did we want that so badly?

Cathy said...

Yay, Dyl!!!

Anne and Whitney: Up, Down and All Around said...

great post! love how cassidy wanted you to "take a video of us" and how dylan is just walking like he has been doing it for years :_

Anne and Whitney: Up, Down and All Around said...

oops- that was supposed to be a smiley face at the end of my post :)

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