and not by me.
I called our satellite hospital this morning to verify Dylan's endoscopy procedure. You know, the procedure that I have talked about incessantly for the past, oh, couple of months? The one that I was hoping would help us understand the cause of his constant vomiting? The one that was scheduled by our GI doctor for November4th? Yes, that one. The secretary collected my name and number and said that a nurse would call me back to speak with me about all of the details.
10 minutes later:
Nurse: Is this Dylan's mother?
Nurse: Sooo, he has Down syndrome?
Me: Er. Yes?
Nurse: Oh. Yeah. Um, he can't have his endoscopy done here, then.
Me: Excuse me? Why not?
Nurse: We do not do procedures that require anesthesia on any Down patients.
Me: Excuse me? Why not?
Nurse: Because we are a free standing building and are not connected to any hospital. We cannot take the risk, you see. You will have to reschedule it down at Children's.
So. After throwing the phone across the room and crying tears of defeat and frustration, I picked it (and myself) back up and called just about every medical person we are involved with who I thought may be able to help us expedite the rescheduling process. Unfortunately, I have not been very successful as we are currently looking at the end of November/beginning of December for the next available endoscopy appointment at Children's.
You know, I really do try to believe that things happen for a reason. Seriously, I do. So right now, I'm just hoping that there is a reason for all this. And in the mean time, where oh where have I left my last beer?
Now, I am wondering if you are wondering why I am suddenly quite eager about getting the endoscopy done, when back in July I actually had the opportunity and declined? My answer to that is that his reflux has gotten considerably worse since then. Actually, back then, the endoscopy was scheduled to check for a laryngeal cleft. Vomiting wasn't even a concern a few months ago. So, because his struggles with reflux have gotten so much worse and because he has begun to lose weight, I now feel that an endoscopy is justified.
Am I wondering if perhaps they will find nothing and we will be left with the belief that this is all a low tone issue? Yes. Am I kicking myself (hard!) that I didn't get the endoscopy done when I had the chance. Indeed.
Ah. Onward we go.