Have you ever had one of those days? You know the kind. The ones where you reallllly wish you had never gotten out of bed in the morning? Yeah. We had one of those yesterday. Not. Fun.
After waking up this morning and vowing to forget that yesterday ever happened, there is, however, something that I can't stop thinking about.
Yesterday Dylan's OT was here for a scheduled visit. We were talking about how Dylan's 6 month formal evaluation is coming up. I asked her what I should expect from this. She told me that the EI team would be testing Dylan on specific skills such as fine motor, gross motor, etc. The EI team wants to see where he is with the goals that were set for him back in July. She said that based on what Dylan could do, they would place him on a monthly scale.
She then went on to say, "I can already tell you this. He will most likely fall in the 2 month range for most of his abilities.".
Even though I already know that Dylan is "behind" where he "should" be, hearing those words, "2 month old" spoken out loud felt like a swift punch in the gut. You know...I don't see Dylan in that way. I just see Dylan. I have been working pretty hard at trying not to compare him to anyone else. And as an athlete and big ol' competitor, that isn't an easy task for me. But, I'm trying. And now this is being shoved in my face. In black and white, too - your son is not where he should be. Where most babies are. He is behind. Pretty far behind, too.
So, what I really don't understand is why my little guy, who has Down syndrome, is being compared to other kiddos who do not? What purpose is that serving? Will it help him achieve his goals any quicker? Will he then be able to control his neck muscles better? Will it make me or his dad feel remotely positive having that piece of information? I don't get it. I really don't. I'm a teacher, so I fully understand the need for testing to see if goals are being met. But to then go on and compare him to a "typical" baby...I don't see the purpose.
And honestly, because of the way that yesterday was going, I really could have done without that little piece of information that my son, at 6 months of age, is already 4 months behind. I say, let's give the kid a break. He just went through major heart surgery with some complications to boot. The mere fact that he is here and is smiling, is quite an impressive accomplishment if you ask me.