Dylan's EI nurse was here this morning, so I was able to speak with her about my feelings regarding the upcoming evaluation. She totally understood where I was coming from in regards to the whole age placement situation and agreed that it was not necessary for me to see or hear that information. Hm, that sounds kind of weird...I do not mean that I want to live in a world of denial here, it's just that I would love to be able to assess Dylan on what he can do as opposed to what other 6 month old babies who do not have Down syndrome can. Anyway, his nurse said that we will focus on where Dylan is at right now with his goals and then discuss where we want to go next.
So, I feel good about that. Much better than I did a few days ago, that's for sure.
Thank you again for all of your support. We love you!
21 comments:
That is good that you are speaking up! Dylan has overcome so many obstacles in his life and he is doing great. He will do things in his own time when he is ready. What is the rush any way?!
He is too cute :) Oota boota
Yea!! Great news!!
Fab news!
Fab news!
Dylan, you are such a handsome boy!!!. I’m happy to hear the wonderful news :). Dylan is going to continue to reach all his goals showing everybody ALL HE CAN DO ~
Lots of love.
what an angel!
Dylan is so cute.
Laurie...I feel ya...I wish they didn't always focus on typical charts...Our little ones will amaze us at their own pace and I'm glad his therapist is not going to compare, compare, compare....DYLAN is just so darn adorable...I know I say that always, but he really is a little sweetheart and heartbreaker...
That's great that your EI nurse understood how you feel.
I love that pic. of Dylan.He looks so handsome in that color!
No one ever made a pink bouncy seat look as good as Dylan!
He is so darn cute!!!!! You've inspired me to do a video of Joaquin :)!!!
What a little cutie pie you have!!
That's great. Also, I didn't think it was possible for that kid to get any cuter, but he has. Such a great smile!
And where'd you get those PJs? Love them!
That sounds like a good plan. And that is SUCH a cute pic!
Laurie~ Dylan is growing up to be quite a handsome fellow, his accomplishments, no matter what should be celebrated!! He has achieved many good things with only more to follow!! I love reading your blog and keeping updated on Dylan's progress! Keep up the good work Dylan.
AHHH HE IS SOOOO CUTE!!! I just want to squeeze him. And I'm glad to hear your decision was respected
Glad that you're feeling better! I bought that same booster chair that Dylan has and am so excited to use it! Thanks for the idea.
Cute, cute, cute....he is just sooooooo cute.
Hi Laurie- I came upon Dylan's picture and had to stop by. I met my friend's son Dan when he was 5 wks old. He has DS and started EI young. He has always attended reg. school. He has been involved in special olympic(swim), works and is the football manager. He graduates from HS in June and will be attending college at a local university. Tina and I recently laughed and cried as we realized that we never dreamed we would be discussing his college. Dream Big!
I'm so glad she listened to you. And Dylan is way too cute.
I really wonder what is really the purpose of ranking and rating and evaluating our sweet little ones. I mean, can't they just say - "o.k., here's where his is with his motor skills, and the next step is (whatever) - let's see if we can help him with that."
We kind of give Matthew his first 8 months off . . . I mean, he didn't have a working heart and every ounce of energy he had was going toward just keeping him alive! He didn't have anything left for "development." So, even though technically he's 16 months old, we say, "LOOK how far he's come in the last 8 months!" Because, really, that's all he's had to work on the development stuff.
When it comes down to it, EVERY milestone is a huge accomplishment, worthy of celebration. You are absolutely right to focus on what he CAN do.
Besides . . . enjoy the time when he's more immobile - he'll be tearing around your house getting into all kinds of trouble soon enough!! :-) haha
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