The Feeding Team.
For some reason, whenever I say it aloud, it reminds me of The Swat Team or something equally serious, like The CIA or something. Orrr, maybe my brain is just soggy from all of this rain and I am not capable of forming normal thoughts...
Anyway, moving on.
Two days ago we had Dylan's 12 month appointment with our semi-new pediatrician. This is the first time we've met her and I must say, I am quite impressed! She specializes in kiddos with developmental delays and truly knew her Down syndrome stuff!
I was able to explain some of our recent struggles - at length too, because Cassidy was not...errr... shall we say, "invited" to this particular appointment. I talked specifically about Dylan's reflux (did I mention that we are now on medicine #4 with no improvement?) as well as how I've been encouraged by our OT to start using Thick-It in his fluids to encourage better management (AKA - Dylan can't swallow thin liquids without gagging and choking).
The Pediatrician listened to my concerns, checked Mr. Dylan over and recommended that we see "The Feeding Team" down in Boston. She thinks, although is not absolutely certain, that Dylan may have a submucous cleft palate, thus the swallowing issues.
This Feeding Team consists of a Pulmonologist, a GI Specialist, an ENT as well as a Social Worker and a Speech and Language Pathologist. When "The Team" called me with the appointment information, they told me to plan for "at the very least - 4 hours"! Daaang!
Honestly, I am quite curious about this whole "Feeding Team" thing. I must say, I am also pretty relieved that Dylan will finally be getting such a thorough exam of this nature. I mean, who knows. Maybe there is nothing at all going on and we just have to learn to deal with swallowing and spit-up issues. But on the other hand, maybe something is going on and we can go from there.
His pediatrician also called me today with the results from Dylan's blood draw. She said that his TSH thyroid results came back slightly elevated. She said that this is pretty typical for kiddos with Down syndrome and informed me that there is nothing really to do at this point. He will be tested again at ages 1.5, 2, and 3.
SO! Whew, that's alot of medical stuff I know, but thought it may be of some interest. I'll be sure to write about "The Feeding Team" (why yes, yes I do like writing "The Feeding Team"!) after our appointment in a couple of weeks.