Dylan and I just got home from 2 appointments - the first was a hearing test and the second was a follow-up with his GI doctor. After being at the hospital for 3 hours, I began to get thoroughly annoyed, err...I mean I began to think. I began to question the necessity of all of this stuff. All of these darn appointments. As we were driving home, I started to wonder how a person, more specifically, a mom, can know how to pick and choose which medical appointments and Early Intervention services are absolutely, positively necessary? I mean, we can't just go along with every single suggestion that is made, can we? Or do we? I'm not trying to be snarky. I honestly don't know. Yes, I try to go with my instincts, but that is certainly not fool proof. Heck, I have probably already made approximately 3 zillion wrong decisions since Dylan was born.
I have left every single hearing test that Dylan has ever had confused - beginning with his newborn screening. He has never officially passed a test, yet I have always been reassured that it may not mean anything. That, in fact, he may be able to hear just fine, but they don't know for sure. Today was no exception. Although this time, the results showed a possibility of mild hearing loss in both ears as opposed to only his right ear. This time, they administered the behavioral test as well - the one where sounds are administered through speakers and they watch to see if Dylan turns his head appropriately. Bahhh. Who knows if he was tired/not in the mood/too busy clapping and waving to care/or really couldn't hear the sounds? Well, now we have a follow-up appointment in 8 weeks to see if there is any change - good or bad. Keep in mind that this is probably our 6th hearing test this year. At the next eval, if his results are worse, we will have an initial appointment with an Ear, Nose and Throat doctor to begin the search for finding out more information about the exact hearing loss and to discuss the possibility of putting in tubes.
So there's that.
Then, Dylan's GI doctor talked with us a bit more about the swallow study results as well as the Endoscopy and Bronchoscopy that were recommended a while back. I still stand firm right now that we will hold off on the 'oscopies. But again, what do I know? So we were at the GI doctor for over an hour for nothing. I mean, literally, nothing. What is the point of that? Seriously?
That reminds me, I remember mentioning to Dylan's pedi a while back that I noticed he sometimes wakes at night and occasionally makes noises in his sleep (kind of like a snore, but not really) and she suggested that he have a sleep study done. Still haven't done it. Is this necessary?
And speech. We are most likely going to be adding that service soon in addition to OT, PT, EI Family Therapy and twice monthly appointments with our EI service coordinator. Music therapy is still on hold. Last week our service coordinator mentioned that she is starting to put a feeding team together and would I be interested in having them come out to evaluate Dylan? My immediate response? "Yes, definitely!".
Again with the picking and choosing. Are these all necessary? Well, no of course not. But which things are? I am trying to do everything possible in the best interest of my child, but how much is too much?
How do you pick and choose? How do you wade through all of the doctor appointment recommendations and Early Intervention service suggestions? What do our children need? I mean really really need? And what things are simply precautionary?
Sometimes I wish we could just "be". But then if we were just "being", you SO know that I would be feeling guilty for not doing something.
Whew. If you made it through this jumbled mess of confusion, I'm impressed. And I thank you for sticking it out.