So...I've been feeling badly about not posting anything on Sunday - World Down Syndrome Day.
Well, maybe it's more so that I've been feeling badly that I actually forgot that it was World Down Syndrome Day. I feel like a pretty terrible advocate, to be honest. I mean, I knew about it, I knew that it existed and that it was coming up, but then when the day was actually here, I forgot...
It may be because I have a pretty poor memory.
Or it may be that when our lives are filled with such ordinary, beautiful moments,
the words Down syndrome do not even enter my mind...
That was Sunday.
And then there are other days, days like today, when Down syndrome is right there, front and center.
It's raining again and I've been on the phone with Aetna for over an hour today. We just recently got back from an orthopedic appointment and I'm curious (and by 'curious', I mean 'stressing the heck out')about how much Dylan's orthotics will wind up costing us.
Oh, the medical stuff. Now that's the stuff that gets to me. I'm not just talking about the time required for these appointments, but also the cost of each one. I mean...seriously? I'm all about therapy and being proactive, but at what cost? Over $350 for a 4 minute GI appointment in which nothing is accomplished? "Dylan's doing well? Great! So, let's continue on with the Prevacid and we'll see you again in, say, 2-3 months?". Oh, and that dietician that we just saw? Er, $364. And if your kiddo needs any kind of surgical procedure? OUCH.
Our insurance isn't great, but it's also not terrible. And we have been incredibly lucky that Dylan has been a relatively healthy kid, too. Oh, I know I'm preaching to the choir here, but...sigh.
It just makes me feel sad that we, as parents of kids with Down syndrome, have to pay so much money to do what's best, no - what's necessary - for our kids. Since most children who have a diagnosis of Down syndrome are typically prone to medical challenges, why aren't we eligible for better (ahem, and cheaper!) medical coverage? I just don't get it. It's not right.
Sorry to be so cranky. It's just that every now and then, the medical stuff just makes me nuts...and I wish, so badly, that I could actually do something about it.
But...onward and upward we go.