Wednesday, August 3, 2011

I'm not ready.

I have spent some time this past month thinking about my blog.  I considered letting it go, wondering if perhaps it's time...

But I'm not convinced.  There is still something keeping me here.

I'm not ready. 

I started this blog shortly after Dylan came home from the NICU over three years ago.  Dylan's diagnosis of Down syndrome was a surprise at birth.  As were his heart defects.  I started this blog to keep family and friends updated on Dylan's daily life - which is why I named it, "Days with Dylan".  I had no idea that it would become something so much bigger... 

This blog became my support system from quite early on.  I remember years ago, writing posts with tears falling down my face.  I was overwhelmed and found that the connection with others who were going through the same things as we were, immensely helpful and comforting.  Especially around the time of Dylan's heart surgery, I felt that I was not alone; that there were many people out there thinking of us...people who knew exactly what we were experiencing; what my own heart was feeling as his got repaired.

Now that Dylan is 3 years old, life is different.  I am not sad and I am not afraid.  I am hopeful, happy, and deeply in love with my son.  This past month I wondered if there was any reason for me to continue Days with Dylan.  Our life is...much less dramatic now. 

But there is a reason to continue.  The reason is Dylan.  The reason is the importance, the necessity, of advocating for people with disabilities; for people who are thought of as "less than".  If there is any chance that someone out there may come across this blog and walk away with the feeling that Down syndrome is nothing to be fearful of, then it is worth it.  If someone comes across this blog, spends some time reading about Dylan, and leaves thinking just a little bit differently about the way she treats others or the way she thinks about people with disabilities, it's worth it.  

I honestly believe, deep deep down in my bones, that Down syndrome is a blessing. 

So, I'm not ready to stop just yet.  I want to keep writing and sharing Dylan's story because I feel that it's a story that is very much worth sharing. 

*******

Enough with the serious stuff...


More posts to come...

11 comments:

Lis said...

That picture is awesome. And please never close this blog.

Gabriel's mom said...

Thank you for not closing your blog down. Dylan, Gabriel and all of the other children who are blogged about will show the world that they are more the same than different one blog post at a time! New parents will continue to search our answers and will turn to moms who have been there, they will stumble upon one of our blogs and will see that even in the tough times they are not alone!

babybluewater said...

Keep on blogging Laurie! It will help :)

Ann said...

: )

Zsuzsi said...

I am glad that you are back. I have checked several times and when you didn't write I was hoping that you were just too busy and nothing was wrong. Thanks for the update and keep on writing. I think you are changing hearts while you are at it.

Cathy said...

Glad you aren't going anywhere!! My blog is just full of mundane goings-on around here, but if someone new to the journey of Ds were to see how normal our life is, well...that's a good thing.

kmburgoyneii said...

This is a brilliant blog from an amazing mom. Stopping it? Cultivate iy, so pne day you both may blog on it!

kmburgoyneii said...

* it, so one...

(stupid smartphone)

Katie said...

Good, don't go! =)

Katie said...

And yes, Down syndrome IS a blessing. Everything comes full circle.

Amanda said...

Very glad you're not letting it go!