The surgeon's office called yesterday with a date for our consultation. As soon as I answered the phone and heard who it was, I'm pretty sure my stomach tied itself into a knot. I know that this is a positive step for Dylan, I really do. It's just....well you know...open heart surgery and all.
So, the consultation will be next Friday. To be perfectly honest, I am quite relieved that we are finally making progress with this heart surgery stuff. Oh I'm nervous, anxious, and completely stressed out as well mind you! But, I feel like for the past couple of months, it's just been this ambiguous dark cloud hanging over us...we knew that he would need surgery at some point, but everything seemed so wishy-washy. I've been living my life in anticipation. When will he start showing signs of heart failure? It should have happened by now! Wait, is he sweating? Is he sleeping more than usual? Is his mouth bluer than usual? Ugh...I will be incredibly happy to not have these worries constantly swimming around in my brain anymore.
Now we are moving forward. We have a set date to meet with the surgeon who will then give us a date for the pre-op as well as the actual surgery date. While I am not trying to wish my life away, I have to say that I am certainly looking forward to the day when my son is done with this surgery.
5 comments:
Thank you so much for the update Laurie!!!. I'm keeping you in my thoughts. Soon this chapter will be behind you. Dylan is going to be OK. Everything is going to be OK ~
I can imagine how stressful this is, but Dylan will feel better after the surgery! Love you!
I found your blog on the Gifts website, and even though I've only read the last couple posts, I am looking forward to reading more. Our little Matthew had surgery to correct an AV canal defect in May, 2008. (And, by the way, the VSD portion DID close on its own! It CAN happen!) He did incredibly well with the surgery - only 3 days after, he was a brand-new boy, eating better than ever and more active than we'd ever seen him. And, after surgery we were all done with oxygen, feeding tubes, and worrying that every little virus could kill him! Life is very, very good AFTER surgery. But, I know how hard it is to think about putting your child through that - and I know how hard it is to dread that day - and I know very, very well the mixed feelings you have as his mother. Our story, including hour-by-hour updates during the surgery, is on our blog at babymatthew.wordpress.com. If you have any questions or ever just want to talk to a family who's been through it . . . please let me know! Hang in there.
Amy
I can't wait until it's all behind you either!
Hi Laurie - I too found your blog on the "Gifts" website. My 7 month old son with DS also has an AV canal defect, and the VSD component closed on its own. I am sure I will feel the same anxiety and stress when it comes time for his operation though! Best of luck (not that you'll be needing it!) for the big day. I wish Dylan a speedy recovery, and peace of mind for you too! Stay positive.
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