At our consultation appointment with Dylan's surgeon yesterday, we were told that he has 2 large holes in his heart. I don't understand why we were never told this.
When Dylan was in the NICU as a tiny baby, we were told that he had a hole in his heart. At his appointment with the cardiologist last week we were told that he has a very large hole. Based on what the surgeon said yesterday, he now has 2 very large holes. What is going on here?
As Dave and I were driving home from the appointment yesterday...or rather attempting to drive home in the rain, in Friday afternoon Boston traffic, with 2 very tired and hungry babies, I looked out the window and started to cry. I found that I simply could not wrap my head around all of this information. My son is having open heart surgery. He has 2 very large holes in his heart, one of which we didn't know about? He will be on a heart/lung bypass machine. He will be on narcotics. On a ventilator. Sedated. He will be in the intensive care unit again. Yes, there is a very high success rate - they told us 95% - but I am scared. This is all very real now.
Please don't misunderstand me - I am very hopeful. Ok, extremely hopeful, but scared nonetheless.
Dylan's surgery is scheduled for November 4. Will you please keep us in your thoughts?
Thank you. Much love to everyone who supports us!