I may have mentioned a few (cough *thousand* cough) times, that like many babies with Down syndrome, Dylan has hypotonia, or low muscle tone. We were told this fact shortly after his birth while he was in the NICU. Honestly, at the time it didn't mean much to me as I was trying to digest Down syndrome and an AV canal defect as well. Also, I didn't fully understand the impact that hypotonia would have on Dylan. Now that he is 7 months old, I feel as though I am beginning to understand the challenges it brings.
Dylan is wobbly. So so wobbly. I am concerned that he is quite far off from sitting and I am not able to help him. Each time I try to hold him in a sitting position, he arches his back and gets totally rigid. His OT told me that this is his way of trying to stabilize himself. He feels out of control in a sitting position, thus he tightens himself up. This is understandable, but, how can I get him to get used to sitting if he isn't able to practice the skill?
We try working on tummy time, as I understand it is extremely important in strengthening muscles, but since Mr. Dylan has learned how to roll from tummy to back, tummy time now lasts about .2 seconds.
I am running out of ideas on how to best work with my little guy. I am also running out of places to put Dylan during the day so that he is still working on holding himself together. I understand the bouncy seat as well as the swing are not ideal places for strength building.
I would love to hear some ideas from you if you have them. Any positioners or seats out there that I should invest in?
As always, thank you so much for reading!