...didn't happen. And the reason for the cancellation wasn't exactly because of poor health, either.
At around 9:30 yesterday morning, (after 3 hours of trying to distract Dylan from the fact that yes, he was indeed hungry, and unfortunately still had about 4 1/2 more hours to go before surgery time) the anesthesiologist called my house asking if I "had a few minutes?". He told me that there must have been an oversight with the scheduling as, in his opinion, given Dylan's age, heart history, and diagnosis of Ds, Dylan should have been given the first procedure time slot of the day - a surgery time of 7:30 a.m as opposed to 2 p.m. This first procedure time slot would mean a shorter fasting period, thus the chance of becoming dehydrated less likely. He said that he did not feel comfortable proceeding with Dylan's endoscopy given the circumstances. He said he's been doing "this" long enough and has seen things "that did not need to go badly, go badly and that the most important thing here was to keep Dylan safe".
But that doesn't change the fact that because of someone's mistakes, we have had to pay the price. We are on to surgery date number 3 now, which is scheduled for November 24Th at 7:30 a.m.
And as time continues on, and Dylan's spit up worsens, I am finding that my frustration level isn't the only thing that is increasing. My confusion level is as well. I fluctuate between wanting to just cancel the whole ordeal chalking it all up to low muscle tone, and fighting the desire to march him directly into the ER so that we can have immediate attention.
For now, though, we'll wait. We'll be patient. Again.