Soooo, I can't quite figure out how I feel about Dylan's cardiology appointment today. I mean, I know I'm annoyed at having to spend 3 hours at the hospital with my baby and my 2 year old (thank goodness Dave was there to help!), but the actual appointment has left me with some mixed emotions.
Dylan weighed in at 10 lbs 2 oz. The Cardiologist was very pleased with this gain. She was surprised as well, because he still does not appear to be showing any major signs of heart failure. She did notice that his breathing appeared a bit labored, but said that that was to be expected. She went on to explain that because he is still gaining weight and is not experiencing heart failure at this time, that maybe the VSD - the hole in his heart - isn't as large as it was when he had his first echocardiogram while in the NICU. Ahem, I don't think I ever actually knew that it was a "large" hole to begin with. For some reason, hearing that made me feel sad. I always assumed that it was a little one because he's always done so well. And to be perfectly honest, I secretly held this teeny tiny glimmer of hope that it would maybe sort of kind of possibly somehow close on its own...even though I was specifically told by a cardiologist that it wouldn't. Hey, a girl can hope, can't she?! Anyways...because he's been doing so well, today the doctor said that there may be a chance that we could possibly put off the surgery until spring! So, this left me feeling quite hopeful...
Until the doctor decided to do another echocardiogram to see what was going on with his heart. An hour later, when the echo was finally complete (poor ol' Dylan!!) we were told that indeed, he still has a "very large hole" and will be having the surgery in October after all. Greeeeat.
Now we are just sitting here waiting for a call from the surgeon. He will call with 2 dates - one date to meet with him and discuss everything and one date for the surgery. Ugh. Ugh ugh ugh.
My poor little man. : (
10 comments:
::.Hugs and kisses:: He is such a tough cookie like his mama isn't he. I'm glad that Dave was able to help you out and that Cassidy is being the wonderful sister that she is. Children have a way of knowing these things don't they?
Poor little guy, he will do great. Do they have any idea when you will get the phone call, and the date?
What a brave boy. And brave mama! I guess I hope you get the date soon, so the anticipation of that part at least will be over. Love you!
Dylan is such a fighter!!!. Everything will be fine Laurie. =)
Kim - Supposedly we were going to get a call this evening. That hasn't happened, so I am going to call them tomorrow.
Thanks for the comments everyone : ) We LOVE you!!!
Ahhh, Laurie. Funny how I feel this connection to you and Dylan, and I feel your emotions when I read your posts. Deep breaths . . . everything is going to be okay.
((hugs))
Ugh, I think there are more wires than baby in that picture! How cruddy to spend so much time in the hospital (for all of you). Sorry the news wasn't better in terms of the surgery, but what an amazing little guy you have for him to be doing so great.
Your little man is a beaut! He's going to do great. Get the surgery over with and you'll both feel lots better
What a brave little man. He looks so cute there though in all those wires.
Love to you both. What a little fighter he is.
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